Kidney — TransplantLyfe

Kidney

Potential Loss of Social Security Disability and LTD

JMHobdayTransplant Patient
January 25, 2024 in Kidney

I wanted to reach out to see if anyone may have had experience with the following situation. I have been on dialysis due to ESRD since August 2017 and have been on SSD and LTD. In the same timeframe, I became a cancer survivor, but the cancer battle has had lasting major negative effects on my body. I am eligible for a kidney transplant in early 2025 and my question is could I potentially lose my SSD and LTD if I get a transplant? The SSD and LTD were approved primarily on my ESRD diagnosis. I know this may be more of a legal question, but I thought someone may have been down this road already.

Does anyone know of any free legal support that might be available if needed?

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1 - 5 of 5 Replies

  • Slm75Transplant Patient

    From my own experience, I only got SSD for 3 years after the transplant. I was never on dialysis and my transplant was over 37 yrs ago.

    January 25, 2024
  • fern22Transplant Patient

    I don’t have much to add to this but just wanted to say this is a great question & topic to discuss. It took me so long to get SSD. I am 8 months post transplant now & have been wondering how long they provide benefits once transplanted.

    January 25, 2024
  • KarinExpert
    Transplant Patient

    Such a good question! We should have a do ability expert weigh in - perhaps we can do a seminar around this @Berriosa1234

    January 28, 2024
  • MHobdayTransplant Patient

    Any one have anything to add to these responses? How does one locate advocates to assist in these types of issues (if they exist)?

    March 12, 2024
  • JeanmarieTransplant Patient

    I will send you a DM. I might be able to help.

    March 17, 2024
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