General
Immunosuppressive side effects
May 9, 2025
in General
Recently, the conversation about hand tremors, insomnia and anxitey were brought up on the forum as a result of our medications. Just want to hear what other side effects you guys have experienced or illnesses as a result of the immunosuppresvie drugs?
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I faced pretty bad insomnia the first few weeks after transplant surgery and required sleeping pills for about two weeks to help me fall into a regular sleep routine. Hand tremors were pretty common for me when on Astagraf, but after my switch to Envarus, they ceased. Around year 2 or 3 of my current kidney transplant, I also experienced viral warts on the sides of my fingernails that were gross to look at and so very painful. I had to have them burned off! Thankfully, they never returned.
@onlylivingboyinny I had really bad warts that started to come up about a year and a half or two years into my transplant. They got really out of hand and took probably almost 2 years to treat. First they would try cryotherpay (freezing them) every 3 weeks but some of them only got larger. Finally a combo of that and a chemo injection made them go away completely. But yes! So painful and gross. I remember I was in college and I would constantly have to cover them with bandaids and sometimes they made it difficult to write or do certain experiments in lab. So far they haven't returned for me either but def one of the more annoying side effects probably because of the pain and how visible they were.
Like others, I've had to deal with warts. But also increased anxiety which I never had before. Not just "anxiety" in the common sense, but clostriphobia (which is a class of anxiety disorder). Had it hit me on an airplane once and it was off the charts. Now I take a pill before I fly to be sure that doesn't happen again!