General
Immunosuppressive side effects
May 9, 2025
in General
Recently, the conversation about hand tremors, insomnia and anxitey were brought up on the forum as a result of our medications. Just want to hear what other side effects you guys have experienced or illnesses as a result of the immunosuppresvie drugs?
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I faced pretty bad insomnia the first few weeks after transplant surgery and required sleeping pills for about two weeks to help me fall into a regular sleep routine. Hand tremors were pretty common for me when on Astagraf, but after my switch to Envarus, they ceased. Around year 2 or 3 of my current kidney transplant, I also experienced viral warts on the sides of my fingernails that were gross to look at and so very painful. I had to have them burned off! Thankfully, they never returned.
@onlylivingboyinny I had really bad warts that started to come up about a year and a half or two years into my transplant. They got really out of hand and took probably almost 2 years to treat. First they would try cryotherpay (freezing them) every 3 weeks but some of them only got larger. Finally a combo of that and a chemo injection made them go away completely. But yes! So painful and gross. I remember I was in college and I would constantly have to cover them with bandaids and sometimes they made it difficult to write or do certain experiments in lab. So far they haven't returned for me either but def one of the more annoying side effects probably because of the pain and how visible they were.
Like others, I've had to deal with warts. But also increased anxiety which I never had before. Not just "anxiety" in the common sense, but clostriphobia (which is a class of anxiety disorder). Had it hit me on an airplane once and it was off the charts. Now I take a pill before I fly to be sure that doesn't happen again!
That is very intense! I am sorry that happens to you now. It sounds like everyone has expereinced an increase in anxiety to some degree, but I can't imagine how it was to expereince it during a flight. Was that also your first time realizing you had claustrophobia?
Yes it was the first time. I've never felt it before and had flown many, many times. It just "wham" hit me like a ton of bricks.
I experienced intense brain fog from my immunosuppressive medicine. So bad that I had to switch medication.
currently i'm on prednisone mycophenolate everolimus and tacrolimus the tacrolimus gave me some tremors but i'm trying to process through it
Hlo there . With in an year of using medicine like prednisolone 10mg , tacrolimus 1.5 mg , azathroprine 100 mg // day I got fungal infection with 5 months of transplant and then I used Ketokem soap and benzoix solution ,other ointment but it comes aften every month . This is the major side effect . I got big black birth mole like spots on my foot . And I do feel heat more temparature in my body and even more sweating, urge to eat more and move less . I got more side effects than anybody in my hospital..
My husband is 31 years post 1st heart transplant. He had a 2nd heart 19 years ago due to cardiac allograft vasculopathy (blocked arteries caused by the medication). He also had kidney failure (again thanks tp the medicaton) and had a kidney transplant 11 years ago.
Long term he now has diabetes type 2, osteoporosis, osteoarthritis, pseudo gout mainly in his wrists....
He still manages to keep smiling and always thankful that he is still here living life