General — TransplantLyfe

General

Transplant Experience Survey

Ldybug97Transplant Patient
May 30, 2025 in General

 I’m a senior psychology student (and a fellow transplant recipient) currently working on my senior thesis. I’m studying how emotional experiences—like guilt, worry, openness, and personal health responsibility—affect life after transplant.

If you’re a transplant recipient, I would be so grateful if you could complete my anonymous survey. Your honest responses will help me better understand the emotional side of transplant recovery and how we can support each other and future recipients.

https://docs.google.com/forms/d/e/1FAIpQLSftVnBB3EqERsKfkuGlfMEug31c5abZOaQzV-AnvD0mMiXtRQ/viewform?usp=header

Your participation is completely voluntary and confidential. If you have any questions, feel free to reach out.

Thank you so much for helping me with this meaningful project!

With appreciation,

LaVise

1 - 7 of 7 Replies

  • DomTransplant Patient

    Love this LaVise! Best of luck on your thesis!

    May 30, 2025
  • Ldybug97Transplant Patient

    @Dom Thank you

    May 30, 2025
  • TheMacTransplant Patient

    Completed! Good luck! Would love to read it when it is completed.

    May 30, 2025
  • Ldybug97Transplant Patient

    @TheMac thank you so much. I will definitely let you read it when I’m finished. I have to submit it June 20 and it’ll take about a week or so to get it back and then I will send it your way. I just completed one on stress and anxiety last semester. This is actually a continuation to that paper.

    May 30, 2025
  • lescp3Care Partner

    Great work - please do share highlights with us here! Please also share takeaways from your last paper. Would love to see :)

    June 3, 2025
  • Ldybug97Transplant Patient

    I recently completed a study called “Post-Transplant Independence, Social Engagement, and Work,” looking at how physical and emotional health affects life after transplant.

    📊 Some Key Takeaways:

    • Independence improved significantly for most recipients
    • Fatigue and mild to moderate anxiety were still common
    • Social engagement increased, but not for everyone—health stressors still get in the way
    • Anxiety levels didn’t differ much by organ type—showing that emotional challenges are something we often share, no matter our transplant journey

    💡 What’s Next: Diving Deeper Into Emotional Strain

    Now, I’m expanding this research to focus on the emotional weight we carry post-transplant—things like worry, guilt, disclosure, and how responsible we feel for our health.

    As a recipient, I’ve lived these feelings too. Since my transplant, I’ve done incredible things—but I still carry the thought that someone had to die so I could live.

    🎯 My New Study Focus:

    How do worry and guilt affect our openness and our sense of responsibility after transplant?

    I’ll be exploring:

    • Worry about rejection and long-term health
    • Guilt—feeling undeserving or anxious about our second chance
    • How open we are about our transplant with others
    • Whether these emotions affect how well we care for ourselves

    📣 I’ll be sharing an updated survey here soon, and I would love your input. Every experience helps us understand how to support each other better.

    Thanks to everyone who participated

    LaVise 💚

    Kidney Recipient | NJCU Psychology Student

    June 3, 2025
  • Sdey0522Expert
    Transplant Patient

    Thanks for sharing your takeaways, @Ldybug97 👍

    June 5, 2025
Sign In or Register to comment.