I'm not sure if this has already been discussed but I was wondering if we could compile our best tips for people new to CKD. What are the most helpful tips in your opinion that you would give to someone who is new to CKD?
I agree with the tips above! I would add that you should prepare to make lifestyle changes but also be kind to yourself. Living with CKD is hard but it is possible to get to a stable place and still live your life. I would also add that it is then important to share that experience. When people hear about a patient story they might be inclined to get screened and be proactive about decreasing their risk for developing CKD.
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Very first and important, always follow what your nephrologist says and check which medications, supplements and diet that you can and cannot do.
Transplant Patient
1) never give up and try to stay positive - CKD can be reversed or at least halted
2) learn as much as possible from your provider and peers
3) diet and exercise are critical
4) if on drugs please follow the instructions and don’t forget taking them
good luck!
I agree with the tips above! I would add that you should prepare to make lifestyle changes but also be kind to yourself. Living with CKD is hard but it is possible to get to a stable place and still live your life. I would also add that it is then important to share that experience. When people hear about a patient story they might be inclined to get screened and be proactive about decreasing their risk for developing CKD.
1) Be KIND to yourself, take one day at a time.
2) Keep a list of your medications in your wallet in case of emergencies (I suggest including your doctor's number too)
3) Take advantage of groups/ organizations like this, with other patients willing to share their stories to help others.
4) Don't leave out your support: family and friends. They will be the ones holding you up when you can't do it yourself.