General
Long Term Transplant Survival
June 24, 2026
in General
We could have talked for hours in our support group tonight with our 20+ year transplant recipients! A part 2 is definitely needed.
In the meantime, drop your questions here. What have you always wanted to know about long term survival post transplant?
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does the meds finally decrease? and by how much?
Sadly u missed that discussion.
what are the tips for 20 yr + survival for organ transplant in general .
can someone share nuggets from that discussion pls
Transplant Patient
yes! I know it varies person to person, and organ type to organ type, but after the first year most people are able to get off a lot of the meds/decrease dosages.
The meds do decrease over time but the dosing can also be dependent on other anti-rejection medications you take. For example with myself I am on 7m of Envarsus once a day, Myfortic 1080mg twice a day and 5mg prednisone. If my GI could handle an increase in my Myfortic dose I could lower the dose of Envarsus I am taking. And as someone else said it also depends on the organ.
Some programs give patients prophylactic medications after transplant to prevent the recipient from developing conditions like CMV and Thrush. Which can be the reason why you take so many pills early on as a recipient.
I am a kidney transplant recipient.