General — TransplantLyfe

General

Rare disease day

AliEm14Expert
Transplant Patient
February 28, 2022 in General

It’s rare disease day 2022! I know for me, and some of you, a rare disease was what led to my transplant.

what are you doing for rare disease day? Social media posts, events, wearing your pride? whatever you do, we want to see it! Drop a photo below, tell us about it.

1 - 2 of 2 Replies

  • ShelbycreatesTransplant Patient

    I'm wearing my kidney shirt that says "I Have Been Stuck With More Needles Had More X-Rays Tests During My Journey Than Most People will in a Lifetime, I'm a Kidney Warrior." I was diagnosed with Alport Syndrome in 2016 and had my transplant in 2018. SO MANY NEEDLES!



    February 28, 2022
  • brookegurradExpert
    Transplant Patient

    I don’t have a rare disease to share from pre-transplant, so I’ll be reposting and sharing in IG stories today from my #rarediseasefriends

    February 28, 2022
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