General
Rare disease day
February 28, 2022
in General
It’s rare disease day 2022! I know for me, and some of you, a rare disease was what led to my transplant.
what are you doing for rare disease day? Social media posts, events, wearing your pride? whatever you do, we want to see it! Drop a photo below, tell us about it.
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I'm wearing my kidney shirt that says "I Have Been Stuck With More Needles Had More X-Rays Tests During My Journey Than Most People will in a Lifetime, I'm a Kidney Warrior." I was diagnosed with Alport Syndrome in 2016 and had my transplant in 2018. SO MANY NEEDLES!
Transplant Patient
I don’t have a rare disease to share from pre-transplant, so I’ll be reposting and sharing in IG stories today from my #rarediseasefriends