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Double lung transplant Question

McneilchelseyTransplant Patient
November 21, 2020 in Lungs

Hi, how are you doing and coping post double lung transplant and covid? Are you isolating, staying home or anyone working out in the public during these times?

1 - 10 of 10 Replies

  • Micheal_ThruFaithTransplant Patient

    Hello, my name is Micheal Tunn and 12/13/2020 will make 5months since my double lung transplant. I am great and hope that you are doing well also. I am coping well, I will say that one of the hardest things to deal with is the uncertainty of when and if something could go wrong like rejection or infection and etc. I do still workout, I go on the some of the many Durham hiking trails to ensure social distancing. If I go out in the public then it’s usually for medication or groceries and I’m masked up and bathed in hand sanitizer lol. There is a small gym here at the apartment complex I’m at. I wipe down everything before and after use and be sure to sanitize and wear my mask. Only two people are allowed in the gym at a time so that helps also.

    December 3, 2020
  • lescp3Care Partner

    Wow Michael it is great that you can still access these hiking trails. So happy to hear you can get out in the fresh air in NC :)

    December 9, 2020
  • DoublelungTransplant Patient

    Well I am coming in a little late on this thread I am in hope we get a bunch of regular posters. I/we ( my wife ) have survived very well. At first we stocked up and only went out for groceries when needed once/twice a month. We have a fifth wheel so plugged it in and had instant extra food storage. We have always been pretty self entertaining so 2020 was not that but. We traveled to southern AZ and spent 5 months there “ boondocking “ came back to southern Utah first of March. We always wear mask in public and have for the last 4 1/2 years and will continue to. Life is not just good it is Great. Hope to hear from more and more people.

    April 5, 2021
  • AliEm14Transplant Patient

    Not lung but I’m 7 months post liver transplant and I stay home. I’m fortunate enough my husband works and provides enough that I can stay home and I’m in the beginning stages of launching my own business so I can stay home long term. When I do go out (to get groceries or for a quick trip. Because sometimes I need that for my sanity) I wear a mask (highly recommend Vogmasks. They filter air in and out - my husband and I both have one) and carry my own hand sanitizer which I use religiously

    April 5, 2021
  • DoublelungTransplant Patient

    Hey welcome to the thread. So happy for you๐Ÿ˜„๐Ÿ˜„๐Ÿ˜„. You will get “braver” as time goes by, but even at 4 1/2 I still am cautious. Yes I have worn VOG since day one, RZ is another good mask. And yes getting out once in a while is good for you-way to go. We use sanitizer when out but at home we both use Dial antibacterial soap-should have bought stock in it๐Ÿ˜‚

    April 5, 2021
  • Micheal_ThruFaithTransplant Patient

    Hi everyone! I was just wondering if any of you guys have received the Covid Vaccine and is so have you experienced any side effects.

    April 5, 2021
  • DoublelungTransplant Patient

    Micheal—yes I have had my 1st shot ( Moderna ) our second will be on the 15th. No side effect on the first shot but for a sore arm. How far out are you?

    April 5, 2021
  • Micheal_ThruFaithTransplant Patient

    The 13th of this month will make 9months. I had my first dose of the phizer on the 30th. No side effects other than soreness.

    April 5, 2021
  • AliEm14Transplant Patient

    I'm just waiting on the call for my first shot. @Karin made a really great post about antibodies. It's something I'm going to be aware of when I get my shot. I don't know if you've looked into it but it's fascinating information

    April 6, 2021
  • DoublelungTransplant Patient

    Hello everyone-my clinic told me results were mixed. With our antibodies as such not to except to great of results, but advised me to get the shots. All we can do is hope for the best. Best wishes to all. We are here writing each other so that is a good thing๐Ÿ˜ท๐Ÿ˜ท๐Ÿ˜ท๐Ÿ˜ท

    April 6, 2021
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