Advocacy and push back
I've been really open about my transplant journey and sharing it online. Most of the feedback has been positive. I've gotten a few comments lately about how I don't act like a transplant patient is supposed to act, or people feeling entitled to know every detail about my medical journey just because i choose to share some things online.
I'm wondering how you all navigate this experience of being open about your journey while also not sharing every detail or putting yourself in a box.
There is so much ableism and tone policing and incorrect narratives out there, and I know it's not my job to educate anyone