I'm currently enrolled in a college course called rewriting medical narratives. It's taught by Emily Rapp Black, if any of you know her. And it's talking a lot about the links between story telling and health care, how modern medicine has made so many advancements but it's also lost the ability for doctors to just be present with their patients and learn and have empathy for their stories.
This is something I've noticed with being in the hospital so much since transplant, especially in this Covid season, and it's sparked ideas in my brain for how healthcare needs to change and could be more patient focused. I'm just curious what your thoughts are about this. What was your experience in the medical system, how did you feel supported by your medical team and in what ways do you wish your medical team would listen to your story more instead of just seeing facts and numbers?