Liver β€” TransplantLyfe

Liver

Gilbert’s Syndrome

AliEm14Expert
Transplant Patient
March 7, 2022 in Liver

Went in to the hospital this morning hoping to get clinical trial clearance, coming out with news of another genetic disorder πŸ˜… (also a mystery infection, that is denying me clearance to start the trial this round. Maybe the next one?)

anybody else have Gilbert’s syndrome? I’ve had issues with my bile duct and bilirubin since my transplant and my screenings just came back positive for Gilbert’s syndrome.

1 - 5 of 5 Replies

  • ShelbycreatesExpert
    Transplant Patient

    I haven't heard of Gilbert's Syndrome. You'll have to keep us posted. 😘

    March 9, 2022
  • AliEm14Expert
    Transplant Patient

    @Shelbycreates apparently it’s not super common. Leave it to me to collect the rare diseases πŸ˜…

    March 9, 2022
  • ClaudiaCare Partner

    I'm not the transplant patient, but years ago I was diagnosed with that and was told nothing to worry about as long as you drink enough water to keep the bilirubin flushed.

    April 9, 2022
  • AliEm14Expert
    Transplant Patient

    I definitely do drink a ton of fluids. In a normal circumstance I probably wouldn't have even known I had it, but thanks to transplant it just adds to my complications and things to watch for.

    April 11, 2022
  • Sdey0522Transplant Patient

    So sorry to hear, @AliEm14 . You'll beat it! #positivevibes βœ”οΈ

    Feel better soon.

    April 11, 2022
Sign In or Register to comment.