Kidney/Pancreas — TransplantLyfe

Kidney/Pancreas

Ilet Beta Bionic Insulin Pump

Ldybug97Transplant Patient
November 5, 2024 in Kidney/Pancreas

In August, I made a health-conscious decision to start using the Ilet Beta Bionic Pump. My A1C was high, and I agreed to try the Ilet. Every time I start anything new, I always have a mental block and feel that it is impossible to make a change. After a few weeks, I begin to adjust to the new pump. I was happy because I didn't have to count carbs. Every now and then I would have an extreme low, but for the most part I was able to manage it. Yesterday, the unimaginable happened.

I went to my transplant center for bloodwork after a recent hospital visit. When I left for the clinic, I noticed a drastic drop but I was prepared with glucose tabs and snacks. Everything I tried didn't work, but it elevated a little. After bloodwork, I had a conversation with my surgeon. Moments later I asked the nurse for juice. They tried everything to elevate my level. The only option left was to call an ambulance. It was now a Grey's Anatomy episode. Blood sugar 25 and body temperature 94.1. They placed a bubble blanket to warm my body and started working on getting my levels elevated. It took 4 hours to stabilize me. The insulin pump was giving me too much insulin. Adjustments were made. I am hoping this is the one and only time this will happen.

Do you use an insulin pump? Has this situation ever happened to you?

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1 - 7 of 7 Replies

  • KarinExpert
    Transplant Patient

    Hi,

    i am so sorry!

    i had something very similar happen to me when i tried the monopod many years ago. I was unconscious and was taken to the ER by ambulance - temperature and pulse very very low and needed glucose infusions and heating blankets as well as a hospital stay. After that I never used a pump again. I hope you still dare to use the pump. It is good for you but my fear was the pumping of insulin into my body without control.

    November 5, 2024
  • Ldybug97Transplant Patient

    @Karin I am sorry that you had to experience that as well. A very scary situation for the both of us. my endocrinologist made a change last night at the hospital and I’ve decided to stick it through. I will not travel anywhere until it’s stabilizes for at least three months. I was going to be traveling this Thursday, but my transplant team and endocrinologist said it may be safer for me just to stay home. I will keep you updated on my progress.

    November 5, 2024
  • Workgirl1982Transplant Patient

    I am on insulin in the morning and bedtime

    November 5, 2024
  • Ldybug97Transplant Patient

    @Workgirl1982 Do you use a pen or a pump ? This happened to me because Ibwear a pump

    November 5, 2024
  • Workgirl1982Transplant Patient

    I use a pen . My cousin give it to in my stomach at bedtime. During weekday my aid give it to me. But I hate getting it I don't like it

    November 5, 2024
  • Ldybug97Transplant Patient

    I am happy you have help and support with you

    November 5, 2024
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